A committed and inspired team
Lori Butterworth, M.Ed.
Founder and Executive Director *
I’m the one who inspires our team to improve the quality of life for each child and family.
Lori started Jacob’s Heart in 1998 at her kitchen table when her friends’ son Jacob was diagnosed with leukemia, and has since built the organization from the ground up. Under Lori’s leadership, Jacob’s Heart has grown from serving one child with cancer 19 years ago, to a nationally recognized model of community-based pediatric palliative care serving hundreds of children and thousands of family members each year.
In 2002, in response to a crisis in public health services for children with serious illnesses, Lori co-founded the Children’s Hospice and Palliative Care Coalition and served as Co-Executive Director for eight years along with Devon Dabbs. There, they built a state-wide coalition dedicated to improving care for children with life-threatening conditions, spearheading several healthcare policy initiatives including the enactment of the Nick Snow Children’s Hospice and Palliative Care Act of 2006, which paved the way for the Partners for Children pediatric palliative care program in California. Lori was instrumental in the enactment of Provision 2302 of the Affordable Care Act, which allows children to receive hospice care concurrently with curative therapies. These provisions allow for an entirely new hospice and palliative care service delivery model for children with cancer and other life-threatening conditions. The service delivery model created by Jacob’s Heart was key to the design of these public policy initiatives.
Lori’s awards include Oprah Winfrey’s “Use Your Life Award,” California Association of Nonprofits “Achievement in Innovation” for development of creative, successful program strategies (2007), the End of Life Nursing Education Consortium Palliative Care Award for “outstanding leadership, commitment, and advocacy in improving end-of-life and palliative care for children and their families” (2007), and the Robert Wood Johnson Foundation “Award of Excellence” for the Western United States for an organization that has best “identified community needs for better care near the end of life, advocated for health system changes to bring about better care and developed and effectively implemented specific projects to do so” (2004). In 2008, Lori was named Santa Cruz Chamber of Commerce Woman of the Year, along with Devon Dabbs. In 2014 , Lori received a “Community Hero” award for the Community Assessment Project of Santa Cruz County and the Lifetime Achievement Award from the Red Cross.
Lori is currently studying at the Harvard Kennedy School’s Executive Education Program with emphasis in Strategic Frameworks for Nonprofit Organizations and Exponential Fundraising. She earned two Bachelors Degrees from the University of California at Los Angeles, a Masters Degree in Bilingual Education and studied at the University of Maryland and the Univerisidad Complutense in Madrid, Spain.
Adriana Jerez Moody, M.A.
Director of Family Services*
I’m the one who will lend a helping hand, an advocating voice, an encouraging smile, a shoulder to cry on, and an empathetic heart to our families; striving to offer them practical and emotional support and the resources necessary to make their lives a little bit easier in this difficult time.
Adriana brings to Jacob’s Heart a passion for helping children and their families, as well as a variety of professional experience, as well as a personal understanding of cancer and loss. From a young age she knew she wanted to help others, and over the years she has done so by working with children and families in both the mental health and education fields.
Adriana has a Bachelor’s degree in Psychology from UC Berkeley and a Master’s degree in Clinical Child and Adolescent Psychology from the Instituto Superior de Estudios Psicológicos in Madrid, Spain. Adriana has worked as a Mental Health Counselor and Treatment Facility Supervisor at Fred Finch Youth Center in Oakland. In Madrid, Spain she taught English to children in various bilingual elementary schools and worked as a home-based psychologist for Apoyo Psicológico y Educativo en Casa.
Adriana was also an editor and writer for Vaughan Systems in Spain, publishing books that teach English to Spanish-speakers. She combined her knowledge of child development and bilingualism to write “My First Dictionary” and “Step By Step – English for Kids” in 2016.
Family Support Specialist ♥*
I’m the one who brings love, good vibes and personal experience to the Jacob’s Heart teen group.
One week before her 14th birthday, Mariela Medina was diagnosed with Stage 4 Hodgkin’s Lymphoma. Throughout the many years of treatment, three relapses and a stem-cell transplant, Mariela and her family received essential support from Jacob’s Heart. It is with a spirit of gratitude and a desire to share her own experience that Mariela (now 27), returned to Jacob’s Heart as a happy, healthy 25 year-old. According to Mariela, “Knowing the challenges of a child with cancer, because I have lived it first hand, has helped me help families with the daily challenges of an ongoing treatment and life after it. ”
Mariela provides support and mentor-ship to teens with cancer and organizes fun, meaningful teen activities. “Being a teen with cancer is very different than it is for little kids, we know what’s going on – we need honest conversations and information from people like Mariela who understand what we are going through.” (from a Jacob’s Heart teen).
Like her colleagues at Jacob’s Heart, Mariela is a bicultural “trained trainer” in the art and practice of pediatric palliative care and bereavement through the End of Life Nursing Education Consortium.
Terra Crowl, M.A.
Family Support Specialist*
I’m the one who gives families acknowledgement, reassurance and connections to the resources and services at Jacob’s Heart.
Terra Crowl studied and worked in Spain for three years as she advanced her Spanish and grew her love for working with children. Recently, Terra has moved back to Santa Cruz where she completed her Bachelors of Arts in Psychology, minoring in Sociology and Dance at the University of California, Santa Cruz in 2015. In 2017, she went on to complete a research masters in Political Science at the Pompeu Fabra University in Barcelona, Spain to get a wider macro-level understanding of how collaborative initiatives can create change, to further understand cross-national differences in family wellbeing, and investigate the current welfare state around the world. As a Family Support Specialist, Terra works collaboratively with other members of the Jacob’s Heart staff to provide emotional, financial, practical and psychosocial support for families with children with cancer and other life-threatening illnesses.
Terra has worked and volunteered with various populations including youth with mental disabilities, sexual assault survivors, girls from low-income families, recently released inmates, homeless mothers, and primary-school children in an underserved community in Madrid, Spain. These hands-on experiences have provided a solid background in case management, emotional care, and program coordination. Terra Crowl is a proud member of the Jacob’s Heart Family, and seeks to provide exceptional care to all of the families we serve.
Family Support Specialist
I’m the one who supports Jacob’s Heart families with warmth, compassion and a smile.
Mary’s passionate about kids…that’s why she’s committed her life work to improving the lives of children. Before bringing her compassion to Jacob’s Heart, Mary worked directly with children and families in the foster care system of the Department of Children and Family Services as a Social Worker (for twenty years). As a volunteer in her community, she’s brought love to special needs kids, foster children and orphans.
Mary has a Bachelor’s degree in Social Work from San Jose State University, and is bilingual in English and Spanish. She’s a mother of three and resides in Watsonville with her husband Fred, her teenagers Anthony and Jessica, and their dog Toby.
Dr. Lily Rich, PsyD
Director of Clinical Counseling Services
I’m the one who listens.
“My passion comes from connecting with my clients and watching them move from loneliness and fear to hope, connection and confidence through the work that we do.”
Lily Rich volunteered at Jacob’s Heart during her first year of college and helped grow our programs back in 1999. Inspired by what she learned at Jacob’s Heart, Dr. Rich went on to receive her doctorate in clinical psychology from Argosy University in 2008 and has been working with clients in the San Francisco and Santa Cruz areas since 2009. In 2012 she transitioned from a position at Mills Hospital where she worked with seniors, adults and adolescents through her program, Healing at Home. Dr. Rich returned to Jacob’s Heart in 2015 to serve as a clinical psychologist and direct our counseling services.
Robyn Straley, M.A.
Director of Program Analytics
I’m the one who . . . stands watch: ensuring our program activities adhere to best practices; implementing procedures and conducting analyses that verify and safeguard the integrity of our data; protecting confidential data by acting as the privacy and security officer; and providing staff with the mentoring and support they need to fulfill our mission.
Robyn is a writer with more than fifteen years of experience in technical and grant writing. As a Henry Luce Fellow, Robyn received two years of in-depth mentoring and hands-on training on the techniques of writing for and presenting to an audience of policy makers, media, non-governmental organizations and resource managers. Her graduate field and course work focused on research design, statistical analysis, program evaluation, cross-disciplinary teamwork and public policy. As a research intern at the National Center for Ecological Analysis and Synthesis, she specialized in supporting collaborative research teams with data analysis and informatics.
Robyn has a bachelor’s (2003, Summa Cum Laude, with distinction in major) and a master’s degree (2005) in Geography from San Diego State University. She is a member of the American Grant Writers’ Association. Robyn’s Italian Greyhound, Oliver, is the inspiration behind the pet program at Jacob’s Heart.
I’m the one who creates love…through pixels on a page.
Sue volunteered in the summer of 2016 by producing materials for September’s Childhood Cancer Awareness Month. Sue felt an immediate connection with Jacob’s Heart’s mission, having experienced the effect cancer has on a family, (Sue’s mom had breast cancer when she was a young teenager). With a desire to give back to her community and help others experiencing the challenges cancer creates, she joined the team in December 2016.
A Santa Cruz native, Sue earned two Associate degrees from Cabrillo College—Fine Art and Digital Publishing,—as well as a certificate in Fashion Design from the Fashion Institute of Design and Merchandising. She’s held positions in marketing, design, and catalog publishing for O’Neill, Montbell and Awe Sum Organics
She lives in Soquel with her photographer husband Danny, their two college-aged children (Elena and Leo), and their sweet cat, Octavian.
Director of External Programs
I’m the one who cultivates connections with our community and finds the passion in each individual to give back to local families and children.
Alex has always had a passion for connecting people. She started working at the Student Volunteer Center on the UC Santa Cruz campus, connecting students to non-profits who were in need of creative and hard working volunteers. During her time there, she oversaw several large events including volunteer fairs, an adopt-a-family program, and an alternative spring break program. After she graduated from UC Santa Cruz, Alex knew she wanted to continue to be a part of the Santa Cruz community. That’s when she found Jacob’s Heart.
Alex started working at Jacob’s Heart as their Volunteer Coordinator. Connecting with people and hearing about what brought them to volunteer at Jacob’s Heart was always one of Alex’s favorite parts of her job. As she made connections with volunteers, Alex realized a greater desire to work with connecting more people to Jacob’s Heart. As the Director of External Programs, Alex now oversees all outward facing programs that involve the greater community of Santa Cruz, Monterey, San Benito, and South Santa Clara Counties. Alex has a lot of fun working with a team to plan events such as the Kidrageous Carnival, the Golden Gallop, the Super Fun Run, and the Holiday Hearts program. She can’t wait to connect with you!
Darcy Swisher, RN, BSN, CCRN
Program Director for Camp Heart + Hands
I’m the one who’s responsible for ensuring we provide a relaxing and renewing weekend for the families of Jacob’s Heart.
Darcy Swisher is Jacob’s Heart program director for Camp Heart and Hands. Camp isa new program that provides families a life-changing weekend. The Camp provides children or adolescents with cancer and their families a unique experience to forget about their disease and create bonds with other families enduring pediatric cancer.
The Camp is staffed by pediatric nurses and physicians from Lucile Packard Children’s Hospital at Stanford. The weekend provides support groups, movie night, camp fires, family carnival, crafts, massage for parents, swimming, and a dance!
Darcy brings nineteen years of experience from American Cancer Society’s Camp Reach for the Stars. A similar Camp where she grew up in San Luis Obispo county. After finishing her degree in nursing she started at Lucile Packard Children’s Hospital at Stanford as a Pediatric ICU nurse. Over the past nine years working as a pediatric nurse she has had a goal of bringing the special experience Camp provides to the patients and families at Lucile Packard. After having a very successful first Camp last year Darcy joined the Jacob’s Heart team and is working on creating another wonderful Camp for 2017!
Awarded American Cancer Society’s Silicon Coastal Region “Excellence in Community Volunteerism” for her work with the pediatric cancer program Camp Reach for the Stars.
2012 awarded Dr. Larry Mathers PICU Achievement Award at Lucile Packard Children’s Hospital at Stanford.
Community Education and Outreach Manager
I’m the one who connects the community with Jacob’s Heart—through education and awareness—all with a dash of fun.
Ishtar—a Santa Cruz native—studied Visual Communications at Hawaii Pacific University. Her passion for Jacob’s Heart is rooted by personal experience, as well the experiences of family and friends navigating the cancer journey. Her professional experience in marketing includes community outreach, events, sponsorships and partnerships while at New Leaf Community Markets, founded by her stepfather Scott Roseman…also a cancer survivor.
Ishtar’s love for children began when she was a young adult and nanny. Compassionate about her work in the community, she strives in providing knowledge, understanding and resources to support those who suffer the effects of childhood cancer.
Ishtar lives in Soquel with her husband and three young children.
I’m the one who organizes (and gets it done with fun), so children and families will get the best care and support possible!
Born and raised in Watsonville, Kymberly Lacrosse has been an advocate, organizer, and leader for over thirty years. Advocacy and community service started at the young age of 15, when Kymberly was the first youth to serve on the Youth Services Board of Directors. Working at Jacob’s Heart is an opportunity to give back to the community she loves, especially young people. Kymberly’s heart for children and youth has been modeled through her many years of volunteering and organizing.
Before working at Jacob’s Heart, she was the Project Director of Jovenes SANOS, a youth leadership and advocacy group. The project earned both local and national recognition. Kymberly brings a heartfelt passion to social justice and community engagement that is rooted in an undeniable commitment to see individuals (and communities) be inspired, be powerful and thrive. Her curriculum, Growing Greatness models transformative practices that she intentionally brings to her work at Jacob’s Heart. Her commitment to equity and justice drive her to relentlessly change systems and policies for a more equitable and thriving world.
Working at Jacob’s Heart is an opportunity to support and contribute to an organization with love and kindness at it’s core—values near and dear to Kymberly. Her formal education includes a BA from UCSC and MA from SJSU, both in Sociology.
Danny Guzman, M.A.
Director of Support
I’m the one who completes tasks large and small, creating an efficient workflow for every member of the Jacob’s Heart team.
Danny has worked with children for 18 years—as a teacher of students with disabilities and as support staff—including a wide range of ages from preschool to college. In 2018 Danny transitioned from a teaching career, but his passion for community service work remained.
Danny has a Bachelor’s and Master’s degree in History from the University of New Mexico, as well as a Teaching Credential as an Educational Specialist for students with moderate to severe disabilities from CSU Monterey Bay.
I’m the one who’s the bridge between families and the community—advocating a better quality of life for children with cancer and their families.
Monterey county resident Victoria Lee is mom to a 2x brain tumor cancer survivor and superhero. She knows first-hand the positive impact Jacob’s Heart has on children with cancer and their families. She’s excited to be able to give back to her community, as well as becoming a part of the organization she loves and admires.
Victoria is a peer-to-peer mentor at the Brain Tumor Foundation in Los Angeles. She’s worked with children with learning disabilities for twenty years, and utilizes the positive parenting model. In working with children, she applies behavioral analysis (ABA), meditation, visualization, and stress reduction techniques.
Victoria has lived in Monterey County for eighteen years and has home-schooled for the past seven. She enjoys connecting with her community, organizing events, and fundraising.
Victoria holds a Bachelors of Science in Psychology from Purdue University Global, with a minor in child development, and a focus on applied behavioral analysis.
♥ Staff who are family members of a child with cancer, are bereaved by loss of child, or have survived childhood cancer (or a life-threatening condition) themselves.
* Indicates bilingual or bicultural